Highly Recommended Reading: Rights Come to Mind: Brain Injury, Ethics, and the Struggle for Consciousness by Dr. Joseph J. Fins
Rights Come to Mind: Brain Injury, Ethics, and the Struggle for Consciousness by Joseph J. Fins is a book that examines the ethical and social issues surrounding patients with severe brain injury who are at the edge of consciousness. The book is based on the author's experience as a physician, bioethicist, and researcher in the field of disorders of consciousness, such as the vegetative and minimally conscious states. The book tells the story of Maggie Worthen and her mother Nancy, who fought for Maggie's right to receive adequate care and rehabilitation after she suffered a devastating stroke that left her in a minimally conscious state. The book also explores the scientific advances in neuroscience and neuroimaging that challenge the conventional view of brain injury as a static and hopeless condition, and reveal the potential for recovery and communication in some patients. The book argues that society owes these patients a duty of care and respect, and calls for a reform of health care policies and practices to ensure their dignity and rights. The book is 320 pages long and was published in 2015.
Even if you read no other book on these subjects, read this one.